IMG_0491.JPG

Hi. I am Elizabeth. 

Welcome to my blog. I use this little space to chronicle the adventures of the Noel family!

Thoughts on the day of an IEP meeting

45.jpg

For those of you who have children with Down syndrome, you know the anxiety that comes along with the words "IEP meeting". It is something I have been worrying about for months, literally. 

It is no surprise that this school year has been our toughest yet. New school, new teacher, school anxiety for our boy and a team that is not easy to work with are just a few of the reasons it has been tough. 

We decided to hire an advocate to fight with us for our awesome boy. I knew that day would come, but i was hoping that it would come much later than first grade. We love her though. She is on top of it, and has helped us figure out exactly what our boy needs and what the school's responsibilities are. 

At the retreat I went to in Texas, we had mindfulness training, and the piece that stuck out to me the most was- "the idea of the lion is not the actual lion- save your energy for running from the real lion, instead of worrying about the idea of the lion." I will admit, the idea of the lion has been on my mind so much, that I am weary. Now that the real lion is approaching, I am tired and not sure how I can run. Oh friends, I would love your prayers as we walk into this meeting of 14 people who are not on our side- versus the 3 of us who are fighting for Dex. 

And if you have a great IEP team, go hug them and tell them how grateful you are for them. We have had great teams in the past and they are a gift. 

After the meeting today- we will be making the decision to stay in our school system, or to homeschool him. We are praying for clear direction and wisdom as to what would be best for our boy. 

As I have been preparing, Christy Nockels new album, "Be Held" has been playing on repeat. Yes, it is supposed to be a lullaby album- but those lyrics and truth have been a balm to my heart. I will leave you with the lyrics to the song that I am clinging to today. 

This journey isn't easy, but I wouldn't change it for the world! 

In the Whisper

Day by day, I'm learning how to stay

In the middle of the storm

I'm learning where to lay my head

 

And step by step, I'm learning how to listen

In the middle of the noise

I will listen for Your still small voice

 

So let the thunder roll

And I won't be afraid, 'cause You roll the thunder

And let the rain beat hard

Upon my roof, and I'll dance to it's rhythm

And let the mighty wind

Blow between the oak trees

As I let You steady me

'Cause You're right here in the whisper

Of my heart

 

Breath by breath, I'm learning what You say

When You told me I could trust

Even when the storm is raging on

And song by song, I will sing of your great love

While You're singing it back to me

With the very voice that calmed the sea

 

So let the thunder roll

And I won't be afraid, 'cause You roll the thunder

And let the rain beat hard

Upon my roof, and I'll dance to it's rhythm

And let the mighty wind

Blow between the oak trees

As I let You steady me

'Cause You're right here in the whisper

You're right here

 

So say peace be still

To every beat of my heart

So say peace be still

To every thought in my head

I know your voice, and I will listen and obey

Every time you call, in the night

 

So let the thunder roll

And I won't be afraid, 'cause You roll the thunder

And let the rain beat hard

Upon my roof, and I'll dance to it's rhythm

And let the mighty wind

Blow between the oak trees

As I let You steady me

'Cause You're right here in the whisper

You're right here in the whisper

You're right here in the whisper

Of my heart

 

Thoughts after our IEP meeting...

My favorite shops: Down syndrome Edition